Dup15q Alliance

About Dup15q Alliance

The Dup15q Alliance is a rare disease nonprofit 501(c)(3) organization that is the leading global provider of family support, education, advocacy, research, and clinical support for individuals with duplication 15q syndrome. Founded in 1994, Dup15q Alliance’s mission and vision are: 


We help individuals living with Dup15q Syndrome and other related rare diseases reach their full potential by furthering groundbreaking research and therapeutic treatments, supporting families and promoting advocacy.


We envision a world where families, clinicians and advocates join together to improve the quality of life for individuals with Dup15q and other related rare diseases