Sep 07, 2023

Chief of Staff

$200,000 - $225,000 yearly
  • Celiac Disease Foundation
  • Remote
Full-Time Fundraising/Development General Management

Job Description

Celiac Disease Foundation is seeking a non-profit development leader who will serve as Chief of Staff (COS) to our CEO.  If you are an experienced development executive, with passion to accelerate the diagnosis, treatments and a cure for celiac disease, a prevalent genetic autoimmune disease, affecting an estimated 1 in 100 people worldwide, and you have a real interest to grow and broaden your impact by providing leadership and general management to our dynamic and capable team, learn more here.

With a full-time fully-remote staff of twelve and a budget of $3.5M annually, the Foundation is a leading global patient advocacy organization with a strong financial footing poised to grow our impact with strategic investments in research, advocacy and education.

 Position The COS is a key advisor and partner of the CEO, the overall strategic leader of development and has day-to-day management responsibility for the Development team, and management oversight of the Scientific Affairs and Policy & Communications teams.

 The COS is an organization-wide resource for each team and the steward of our collaborative and supportive organizational culture. As the next most senior executive to the CEO, the COS works to build, focus, and prioritize organizational capacity and is able to seamlessly step into key decision-making when needed. Working symbiotically, the COS supports the CEO’s focus on developing global relationships and execution of the strategic plan.

 Key Priorities     

·        Expand Foundation’s funding base, growing all verticals – business opportunities, major gifts, annual campaign, corporate/philanthropic relations, institutional (corporate, government and philanthropic) grants, planned giving, events and direct mail/email;

·        Continue to grow organizational capacity through leadership of the current staff, developing members and their strengths, and stewarding a healthy organizational culture;

·        Collaborate with the CEO to cultivate and maintain relationships with board members, advisors, and other opinion leaders and influencers key to the execution of the Foundation’s research, advocacy, and education agenda

Hiring Organization

Celiac Disease Foundation


Ideal Candidate They are highly motivated to support the mission of the Foundation, they are an organization-wide strategic thinker, have an entrepreneurial track-record of driving growth, and possess significant experience in leading and managing teams, systems, and processes to grow organizational capacity.

 A qualified executive brings 10 years of non-profit development management experience and expertise across multiple fundraising verticals. Experience leading remote teams is a must.

They are a naturally effective interpersonal communicator and relationship-builder who easily cultivates trust with senior executives, institutional partners, and corporate stakeholders.  They must have a track-record of promoting and nurturing collaboration across and organization and within a team.

The capacity to spearhead strategy development while simultaneously leading execution of numerous business lines with a high degree of ownership and attention to detail is critical.  Bachelor’s Degree required, previous experience in software, research and policy/advocacy a plus.

Industry/Service Area

Foundation/Grantmaking, Healthcare/Public Health, Public Policy




The Foundation offers generous health benefits and retirement contributions. All team members work a 9-80 work schedule. 

Application Instructions

Submit resume and cover letter to  More details about the Celiac Disease Foundation, our team, the position and how to apply here.

Apply Now