Lipedema Foundation

The Lipedema Foundation is a private, non-fundraising foundation established in 2015 to define, diagnose and develop treatments for Lipedema. It has awarded more than $11 million in the US and internationally to date and maintains the Lipedema Foundation Registry.

Lipedema is a chronic medical condition primarily impacting women and characterized by a symmetric buildup of adipose tissue (fat) in the legs and arms, often with pain and, at advanced stages, impaired mobility. It is frequently misdiagnosed as obesity or lymphedema, though Lipedema is resistant to exercise and diet. Lipedema is widespread, affecting millions of adolescent and adult women, but is vastly under-diagnosed. Awareness is increasing; progress includes recognition by the American College of Cardiology and publication of a standard of care in the United States.

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