Dup15q Alliance

Dup15q Alliance is a rare disease nonprofit 501(c)(3) organization with approximately $1 million in annual revenue that is the unique global organizer of research and clinical care, family education, support, and advocacy for individuals with duplication 15q syndrome.

Founded in 1994, Dup15q Alliance’s mission is to empower individuals living with dup15q syndrome to reach their full potential by advancing breakthrough research and life-changing therapeutic treatments, supporting families affected by dup15q, and promoting advocacy.