Sep 08, 2025
Board Member
Featured
A fast-growing non-profit focused on a group of rare autoimmune diseases, idiopathic inflammatory myopathy which we refer to in general as Myositis. Myositis Support and Understanding (MSU) is seeking board members to help propel us to the next level. Our all-volunteer organization provides "from the Heart" support to patients, care partners, and family members impacted by Myositis. We host live online support, Facebook support groups, and our Myositis Community on Inspire, we provide financial assistance for patients, we have a robust patient-centered research program and we provide "Simply Put" education. We team up with leaders in the research world to connect patients with medical studies, both pharmaceutical and functional.
Our goal is to help make patients and family members' daily lives better while living with this debilitating, and often intractable disease. No medical experience or relationship to the disease is necessary, only a willingness to help an underserved...
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Myositis Support and Understanding Association, Inc.
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Myositis Support & Understanding Association, Inc.
Remote
Board Member